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Moving On

Our Sunshine couldn’t be doing better, and I continue to be thankful, thankful, thankful. Today marks 5 weeks since the heart surgery. We saw our cardiologist last week, and David received a great report. He had gained over 2 pounds since surgery and grown an inch – on the down syndrome growth chart he is in the 75th percentile in weight and 90th in height (this is pretty significant for a heart baby). All his vitals where perfect. The ECHO did show moderate leaking on the left side of the heart, and Dr. Lee said he would continue to watch the leak as David grows. We are praying the leak will heal or never require attention. An additional surgery will be needed if the heart ever begins to dilate from the leak or if David begins showing symptoms. I was surprised when Dr. Lee said he would see us in 6 months. WOOHOO!!! We also saw Dr. Feliz (Hirschpreung’s surgeon) who gave us nothing but good news and sent us on our way for 3 months.

David has physical therapy twice a month right now, and Louis and I are very pleased with his progress. We celebrate as David makes new discoveries. In the last few weeks he has started to reach out and grasp items that are close by – my glasses, Lily’s hair, he particularly likes Louis’ beard. He is so close to rolling over, and when he does I’m pretty sure this mama will break out in a happy dance! Many children with DS have issues with different textures – this is true for food and touch. It is recommended that foods are started at an early age so that an oral aversion to texture does not developed. I bought some organic oatmeal cereal, and I nearly cried last night at his first feeding. HE DID GREAT! Half way through the feeding he was waiting with his mouth open for the next spoonful of cereal. This is a mercy – no gagging, spitting the food out. His feet start kicking with excitement as he waits for the next bite. Louis, Lily and I have become David’s cheerleaders. We find joy and thankfulness in the small things, because we have learned there are NO areas of our lives that should  be taken for granted.

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I feel like we are finally moving on. Our focus has shifted from health issues and heart surgery to just living our lives. We have settled into a normal routine, well as normal as it gets with two small children. I spend my days with Lily and David, and they are good, crazy, wild days. Days where we do the same thing over and over. Days I wouldn’t trade for anything. Days where I don’t miss anything because I am blessed to be a stay at home mom. Days where we all wait for Louis to arrive home from work. Days where Lily runs out the door yelling, “Daddy is home.” This proclamation is usually followed by. “I want a piggy back ride or let’s play mad dog or let’s mouse hunt.” (explanation – we just finished Little House in the Big Woods. Pa plays mad dog with the girls. Lily wants Louis to play and she loves it. Mouse hunting is a favorite. Louis and Lily get flash lights and look around for a mouse. Much to her disappointment, they never find anything.) Our family of four is just that – our family. I love my little family. I love being a wife. I love my husband. I love my two children. We are moving forward…

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5 thoughts on “Moving On

  1. Maria Montgomery

    That wonderful news abi 😉 so glad David is doing good. Thx for sharing the great news about the feeding and all the beautiful pictures. We can’t wait to meet little David and see Lilly and u and Louis . Love to u all

  2. Bridget Davis

    Great news!!!I’m very impressed with his weight gain and growth!!! Chloe’s still tiny. Your children r soo cute!!! What a blessing! May God continue to bless!

  3. Rachel Green

    Ahhh…happy tears.

    I love you all, and I love where your heart is, dear Abi. Happy tears all the way through this post.

  4. Beth Halverson

    I just loved reading that you’re able to say, “We’re moving on.” What a sweet, blessed place the Lord has brought your family to.
    David sure is getting tubby!

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