Category Archives: Uncategorized

Holidays

I love, LOVE the holiday season – twinkle lights, decorations, Christmas trees and music, special times with family, the excitement. We began our Christmas festivities the Saturday after Thanksgiving with Christmas music and decorating the Christmas tree. This was a BIG day for Lily, so she wore her best dress

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and shoes.

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It was no small act holding Lily in the air for the tree topper. She’s really heavy – good thing her daddy has big muscles.

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Because it is one of Louis’ fondest Christmas memories he has with his two brothers and mother, Christmas cookies has become a holiday tradition. I turned Lily loose with the sprinkles, so you can imagine the tops of our cookies.

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and you can’t decorate a Christmas tree without hot chocolate…CHEERS!

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Sunshine was busy taking his evening nap, but he joined us later.

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We hope your holiday season is merry and bright.

A Family to Be Thankful For

In the Spirit of Thanksgiving, I would like to give thanks for the wonderful family that God, in His loving kindness, has given me. We are not a perfect group of folks, but four individuals learning to see God’s grace through daily interacting with the imperfections of one another. I enjoy everyday that I am able to spend with my family. That doesn’t mean that every day is easy, but it does mean that a day does not pass by in which I am able to share an enjoyable moment with my wife and children.

Lily is my silly little sweet pea. We laugh and act ridiculously goofy together. Her little sense of humor is one of the highlights of my day. She is also a little snuggler. We like to cuddle up and watch a show or read a Bible story before bed time. I treasure these times and am very thankful for them.

David is my little smiley faced sunshine man. We enjoy cuddling up and chatting or eating. He is a laid back fella, and I love being his daddy.

Abigail is my sweet, kind, beautiful, work horse, wife. She makes sure that everything is going the way it should be. She is very diligent with David’s therapy as well as the rest of his everyday medicine and care. She is a wonderful, patient mother to our daughter, who takes the time and effort to teach Lily how to bake and help out with everyday cooking and activities. She is my best friend. We laugh together, and huff and puff together at times too. We have a wonderful relationship for which I am very thankful.

-Louis

Six Months of…

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David Ewing is six months old today. We’ve had six months of…

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 developmental progress

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 good times with Sweet Pea and Sunshine

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  snuggles – this boy gives the best snuggles!

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 fun…

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and smiles

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Six months of SUNSHINE and BLESSINGS!

A Thankful Daddy who’s High on Downs

The more I read about parents who were informed that their child was diagnosed with downs syndrome, the more I read about fathers who were initially very disappointed and upset. I am thankful that this was not my experience with David. I do not say this because I look down on others who struggle, or because I think that there is something intrinsically better about me than someone else. I say this, because I am aware of the fact that thoughts are not created in a vacuum, they are produced within a context. I might restate my previous statement this way: I am thankful for the providential context that God graciously gave me, that allowed me to be excited, from the very beginning, about receiving a child from God, with DS.

David is the first person with DS that I have ever personally known (as far as I can recall). However, from a child, the love and acceptance of special needs children has been  my “normal”.  My mom was the first influence that God used to cultivate this in me. When we were young, she was a substitute teacher for a while. She was so good with the special ed. students, that eventually she was almost a full time special ed. sub. While I never met any of her students, her love for them and acceptance of them had a profound impact on the way I viewed special needs children. Through the years God has brought many “special needs” children into my life.  But outside of David, there is one that stands above the rest.

I met Jake in 2007 when I began teaching at East Union. I was a choir director who was reviving a music program and moving full speed ahead. My goal was to take a struggling choir program and turn it into a thriving, award winning group. After my first two years I felt that we were well on our way. In 2009, Jake joined chorus. I had no idea what to do with this guy who was so excited about singing that he drowned out the rest of the group with his happy, yet off key, voice. One day as a fluke, I asked Jake if he wanted to help me conduct. This eventually led to him becoming my co-conductor. Through the next two years, I grew to have a real love for Jake. He brought a lot of meaningful moments to the choir, and forced me to change my focus. I could tell you many stories (like being slapped in the face by Jakes conducting during a contest) but it would take too long. I was sad the day Jake graduated, and hoped that someone would come along to fill the special place that he had carved out in my heart.

Well,… that someone happens to be my son. You see, my excitement or lack of disappointment had nothing to do with me, but everything to do with my previous experiences with special needs children. How could I be disappointed, when I had seen and experienced the goodness of God in the lives of these individuals? While this daddy is high on downs, I also have to say that I absolutely LOVE the life that God has given me; not because it’s perfect, but because it’s good.

Some people might think that I am delusional or looking at life through rose colored glasses. I can assure you that I do not live in La La land; those who know me best, know that I do not sugar coat life. I will tell you where I do live, I live inside the reality that every good and perfect gift comes down from a loving Father. My son is one of those gifts. I do not feel sorry for David, and I certainly don’t feel sorry for myself. I’m not just high on downs, I’m high on sweet pea too. I am grateful for my entire family. Thankfulness has nothing to do with what you have; but with who you think has given you the things you currently possess.

-Louis

3 on the 21st

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Before David was born I wasn’t a blog reader. Honestly, I would often wonder…where do these people find the time to blog? Then David was born, and we were making so many phone calls and sending so many emails we decided to create a blog. Louis did most of the blogging in the beginning. After we came home from the hospital there continued to be an interest in David, so I kept writing.

Since David’s birth I have entered and enjoyed the blogging world. I follow several DS blogs. These families, children, siblings, fathers, mothers have become a source of strength, inspiration and sometimes comfort.

I’m trying to participate in a blog hop. You have to copy codes and post links…something I know nothing about, so it might take me a few times of posting to get it right. Meriah over at withalittlemoxie.com began “3 on the 21st” to help create a community for Down syndrome parents, readers, and bloggers. On the 21st of each month (since DS is caused by a split in the 21st chromosome) you can participate in a blog hop. This month since it’s Down Syndrome awareness month she has asked us to share our 3 favorite DS bloggers.

MY FAVORITE DS BLOGS:

http://www.kellehampton.com/  – this was one of the first blogs I stumbled upon after David was born. Please take the time to read Nella’s birth story and watch the clip from Kelle Hampton’s book – Bloom (both can be found on the right hand side of her home page).

http://bakerisourdreamcometrue.blogspot.com/ – this little boy will take your heart and you will smile when you see him. I read this mama’s post and know our future with David is going to be a bright and happy one.  Jennifer is honest, real, has a deep faith in God, an inspiring mother’s heart, a desire to be a Godly wife. I encourage you to stop by and read her blog.

http://confessionsofthechromosomallyenhanced.blogspot.com/ – This blogger grew up with an older sister who had DS. She and her husband adopted, Josie, who has DS. This blog literally makes me laugh out loud.

click on the link below if you are interested in the blog hop

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