Category Archives: God is Good

LeBonheur Heart Reunion

Last weekend Lily, David, my mom, Morgan (affectionately called MoMo), and I loaded up and headed to Memphis for the weekend. Our first stop was Didi and Uncle Steve’s house. Uncle Steve is a great cook, and we had a yummy meal of grilled fish, vegetables, and risotto waiting on us. We always have fun at DiDi’s house. Lily had the camera, so excuse the little finger in the way.


DiDi lives 2 blocks from LeBonheur, so during those first weeks of David’s life we spent alot of time here. Many memories came flooding back – panic attacks, sleepless nights, exhaustion like I’ve never experienced before, tears (tears and more tears), bowls of strawberries and yogurt waiting on me because Uncle Steve and DiDi knew that those were some of the few foods I could keep down, the fear on the morning of David’s Hirschpreung’s surgery…

Here we were 10 months later to attend the second annual LeBonheur Heart Reunion. A lot of those memories brought tears to my eyes, but the faithfulness and mercy of God moved me to tears also. I was there with my two children and with some of the individuals who stood beside me through those difficult times. There was David snoozing on DiDi’s chest, swinging in his little portable swing, happy and content and making us smile with his smile – that smile that lights his entire face. Lily was busy playing in the warm sunshine, and serving Uncle Steve breakfast, and cleaning the cat box, (because that is the “neatest” chore in her book). She is a big sister because of God’s mercy in answering so many of our prayers.

The heart reunion was a lot of fun. It’s kind of strange how easily you can strike up a conversation with a complete stranger. We all have a common bond – our babies were alive and well because God has given man the ability to repair tiny hearts. There were miracles everywhere you looked.

There was face painting and cookie decorating


and crafts


I love this picture of Lily and David.



Dr. Knott-Craig arrived about half way through the reunion and you would have thought a celebrity entered the room, well, I guess to us he is a celebrity. Mamas holding their heart warriors swarmed him. If these pictures don’t melt you heart…






yeah, I was crying happy, thankful tears! If I’ve said it once I’ve said it hundred times. I will say it until the day I die, “I will be forever grateful for Dr. Christopher Knott-Craig.”

Every Good Gift

“Every good gift and every perfect gift is from above, and cometh down from the Father of lights, in whom is no variableness, neither shadow of turning.” James 1:17

My first post on this blog, “All is Grace,” was written while I was sitting in the cafeteria at  LeBonheur hospital. David had been taken for a biopsy to test for Hirspreung’s Disease. He was only 5 days old, and I was a mess. A crying, fatigued, emotional mess. In that post I wrote about a book I had read and re-read shortly before David was born (and have read again since his birth). In One Thousand Gifts the author Ann Voskamp challenges her readers to count the gifts God gives us – count them one by one all the way to one thousand. This time last year I began the challenge. I started listing God’s gifts. I started this challenge for several reasons, but honestly I started this challenge because the author of this book struggles with worry and anxiety, and so do I. It’s a sin I fight every day. Somewhere in the book she says something like – you can’t be thankful and worry at the same. She’s right. This is a practical way I battle my worry. I count. I count His gifts and they are many. When I began counting I thought it would be easy to reach one thousand, but once you get past your usual surface thankfuls it becomes more difficult. You have to look closer, but when you do, you get a glimpse of God’s love towards us in all His gifts.

While we were in LeBonheur I kept counting. I would write His gifts on napkins, receipts, scraps of paper and then stuff them in a book. I recently took the time to sit down and add them to my list. I want to say, “THAT GOD IS GOOD! ALL THE TIME!”  David’s birth, through our time in the hospital, through 2 major surgeries, through trials I never thought I would be able to face, through the last seven months, and YES, through a Down syndrome diagnosis – GOD IS GOOD! ALL THE TIME! I recently had a conversation with a friend, and I was able to tell her in all honesty that David is perfect for me. I’m easily discouraged, overwhelmed easily, battle anxiety, worry, and a melancholy spirit, and this little boy with Down syndrome is a gift I never expected to add to my list, but he’s there. He’s an unexpected gift I didn’t know I needed. “Every good gift and every perfect gift is from above…”

I recently reached #500. I’m half way, and I’m still counting. It’s a great challenge.

Happy Thanksgiving! I’m especially thankful that GOD IS GOOD! ALL THE TIME!